11/26/08 Have a blessed Thanksgiving!

Beverly had her MRI yesterday and we saw her new neurologist afterwards. Her MRI was good. He doesn't think she will need anymore tests. He still doesn't think she has distonia. He doesn't think she has an eye disease.
He continues to believe her pain around her eyes, neck and shoulders is due to her neck muscles. He told her where she was having the pain and he pushed on those areas and said all of that is related to your neck. He thinks he can fix her with medications. Because she has not had any deep sleep in months..probably a year. He has given her a couple of medications to help make her drowsy so she can sleep good and not wake up with pain. She is suppose to check in with him so he can make adjustments to the medications to help them work for her. And he said to not go back to the other neurologist in Louisville because the botox he gave her was not needed. The other gave her 31 shots of botox around her eyes, face, and neck. She can not now control any of those muscles because they are paralyzed. She can't even swallow good. It will take several months for that to go way. She will never see Dr. Olson in Louisville again.
She took 2 pills last night and woke up without pain this morning. She will struggle to talk, not bite herself in her mouth, and move her neck around until this botox wears off. Which means, botox is permanent and he said it goes away when nerves rebuild themselves and move around(grow around) the injected area.

Please pray that this does not take several months. Also, that she will get much needed deep sleep so her neck muscles can rest and repair.


I get my tube out today...woohoo! My incision area is still sore and I am taking Aleve for now. Next week I go for pre-op and bloodwork for my lymph node surgery on the 9th.

Thanks for everything...I am blessed. And today is Tara's birthday! Her first birthday as a mother.

Have a great Thanksgiving!
Love to all,